Cystic Fibrosis Newborn Screening Practice Based Research Network
Registered Date:
Network Acronym:
CFNBS
Network Type:
Pediatric Network (at least 75% are pediatricians or specialize in child health)
Network Status:
Established
Geo Location:
POINT (-122.339094 37.915815)
City:
Richmond
State:
California
Zip:
94804
Main Phone:
1-510-412-1550
Network Director Name:
Marty Kharrazi
Network Director Email:
Marty.Kharrazi@cdph.ca.gov
Network Member Name:
Chris Landon
Network Member Email:
chris.landon@ventura.org
Network Member Role:
Acting Coordinator
Geographic Coverage:
State-wide
Practice/Clinic Location(s):
California
Network Founded:
January 1, 2007
Network Mission Statement:
The Cystic Fibrosis Newborn Screening Practice Based Research Network is committed to protecting and improving the health of all infants by assuring all newborns screening positive for cystic fibrosis receive appropriate screening, follow-up, and medical services.
Current or Past Research Interests / Health Conditions:
Behavioral health
Children's health issues
Depression and other mental health disorders*
Diabetes (Type 1 or 2)*
Health literacy
Pregnancy and childbirth including preterm birth*
Pulmonary disease/asthma*
Current or Past Research Interests Comments :
Children's health issues: Impact of genetic diagnosis; Depression and other mental health disorders: Affect of Newborn Screening on parents
Approximate Number of PBRN Member Licensed Clinicians:
100
Approximate Number of Practices or Clinics:
15
Approximate Number of Patients:
8000