Cystic Fibrosis Newborn Screening Practice Based Research Network

Registered: 
February 14, 2013
Acronym: 
CFNBS
City: 
Richmond
State: 
California
Zip: 
94804
Main Phone: 
1-510-412-1550
Network Director: 
Marty Kharrazi
Network Member: 
Chris Landon
Network Member Role: 
Acting Coordinator
Geographic Coverage: 
State-wide
Clinics Location: 
California
Founded: 
2007
Network Category: 
Established
Network Type: 
Pediatric Network (at least 75% are pediatricians or specialize in child health)
Mission Statement: 

The Cystic Fibrosis Newborn Screening Practice Based Research Network is committed to protecting and improving the health of all infants by assuring all newborns screening positive for cystic fibrosis receive appropriate screening, follow-up, and medical services.

Current or Past Research Interests: 
Behavioral health
Children's health issues
Depression and other mental health disorders
Diabetes (Type 1 or 2)
Health literacy
Pregnancy and childbirth including preterm birth
Pulmonary disease/asthma
Current or Past Research Interests Comments: 
Children's health issues: Impact of genetic diagnosis; Depression and other mental health disorders: Affect of Newborn Screening on parents
Approximate Number of PBRN Member Licensed Clinicians: 
100
Approximate Number of Practices or Clinics: 
15
Approximate Number of Patients: 
8000