J Ambul.Care Manage.
We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings
adherence, Ambulatory, Ambulatory Care, Asthma, Child, clinical, Communication, decision, Decision Making, Development, electronic, Focus Groups, Goals, hospital, Informatics, Interviews, medical, Medication Adherence, Medicine, Parents, patient, patient safety, Pediatrics, Pennsylvania, PeRC, Philadelphia, Research, Safety, support, system, Universities